U = update

If you’ve been following the Capturing CF Facebook page you’ll know I’ve being taking part in the A-Z of Cystic Fibrosis. If you haven’t been following the Capturing CF Facebook page then I encourage you to check it out!

Chest clearance

Chest clearance is a daily task. It’s all about shifting the thick sticky mucus about, up and out of the lungs. Chest clearance is not the worst thing in the world – not even close! It’s a chore though, like doing the dishes: we have to do the dishes whether we enjoy it or not … Continue reading →

Spoons

I across a piece of writing by a woman who lives with a chronic and invisible illness – Lupus. It’s her attempt to convey to others what life is like when you have to factor in a demanding health condition. Please click on the link and read her words and then come back for my … Continue reading →

65 roses

The rose has become a symbol for Cystic Fibrosis (CF). As the legend goes, a young child couldn’t pronounce the words “Cystic fibrosis”. Their best attempt was “65 roses”. Interesting? Yep, might come up in a trivia night one time. Sweet? Check. It tugs at the heart-strings. However, other than recognising it as a symbol … Continue reading →

Pseudomonas aeruginosa

This is the scientific name for a bacteria that is unfortunately very well known in the Cystic fibrosis (CF) community. It’s readily found in the environment (particularly soil and stagnant water) and doesn’t cause problems for the vast majority of people. Unfortunately the CF lungs provide a perfect environment for Pseudomonas aeruginosa (PA) to flourish. … Continue reading →

The amazing Dave and his amazing swim

Dave is almost 11 years past the average expiry date of people with CF (PWCF). As far as I’m concerned this is an amazing achievement. He’s still going strong! He is one of the most compliant and dedicated PWCF I know.