Cystic fibrosis (CF) is the most common inherited condition is the Australian caucasian population.
CF affects many organs but the lungs and the pancreas are the most consistently affected organs. People with CF (PWCF) have thick and sticky mucus throughout their whole bodies. In the lungs, this creates an environment that bacteria love to colonise, grow in and wreak havoc. In the pancreas, mucus prevents digestive enzymes reaching the food so digestive enzymes need to be taken with food.
It is a life limiting condition. The average life expectancy is about 38. There is no cure. It’s bloody hard work. It’s monotonous. It can be scary. On the other hand, sometimes it’s not that big a deal and some of the experiences it brings are positive – there are silver linings in the cloud.
This blog is about capturing all the little and big things that someone with CF has to experience, do, or not do to actually survive and enjoy the life they have fought hard for.