Filed under Treatment

Physio differences

Physio differences

One positive of Dave’s most recent admission was that he was treated by the senior physio. Words cannot convey the value that she has for me, for us, and I daresay, every adult with CF at RPA. Dave and I are very valuable to her too. Since we are married and have accepted a certain … Continue reading

When Heidi met Andy

When Heidi met Andy

In 2011 Heidi Prowse had an absolute cracker of an idea. To cajole friends and family into stripping down to their Speedos, donning Santa attire, and running laps around a Canberran lake in the middle of freaking Winter. These crazy-but-in-a-good-way people were not focused solely on a chilly exercise session but would find sponsorship for Cystic Fibrosis … Continue reading

You look so well!

You look so well!

I took a break from visiting Dave last week. I stayed at home for a couple of evenings to remind our dogs what one of their parents looks like and gave them lots of cuddles. I even let them sleep on the bed. Oh my. When I finally visited Dave again, the change in his … Continue reading

Somewhere in the world it is snack time

Somewhere in the world it is snack time

The doctors gave me an ultimatum. I could either stay in hospital for another week or go home on home IV’s. I think you can figure out which option was most attractive. I’ve been working very hard at resting, sleeping, eating and drinking. No joke, it actually is hard work. We’ve all had things in … Continue reading

Did I mention that I love my port?

This admission has increased my already boundless love for my port-a-cath. The whole process would have been one hundred million billion times more traumatic without it. I required a CT scan to visualise my innards. This meant I needed to drink 500 ml of oral contrast which prompted one of my projectile vomits. I also … Continue reading

The hamster wheel

It’s come to my attention that I am time poor. From sunrise to sunset I am scheduled. If I am not sleeping, eating, commuting, working, dog walking, cooking or cleaning, I am generally doing a CF related task. I feel like I’m stuck on a hamster wheel going round and round because I have misplaced the OFF … Continue reading

The long shot

“It’s a long shot and I say why not If I say forget it I know that I’ll regret it It’s a long shot just to beat these odds The chance is we won’t make it But I know if I don’t take it there’s no chance” Long shot – Kelly Clarkson When I was in … Continue reading

U = update

If you’ve been following the Capturing CF Facebook page you’ll know I’ve being taking part in the A-Z of Cystic Fibrosis. If you haven’t been following the Capturing CF Facebook page then I encourage you to check it out!