Filed under Clinic

The story of my life: not normal but not too abnormal

The story of my life: not normal but not too abnormal

The Annual Review is an institution in CF care. Because CF affects a heck of a lot a huge amount of data is produced during annual review tests. It’s common to check up on bone density, fat-soluble vitamin levels, kidney function, liver function, hormone levels, auto-immune markers, X-ray, CT scan, Cystic Fibrosis related diabetes (CFRD) status, lung … Continue reading

The Hospital Vortex

The other day Dave spent more than ninety minutes waiting for medications to be dispensed at the hospital pharmacy. Everyone I’ve told simply can’t believe how long we needed to wait. And they have a point.

Clinic

Clinic

Approximately four times a year I spend a whole morning hanging out with the team at the CF clinic. My exact itinerary for the morning varies a little but there are some constants. 1. A coffee. It would be physically impossible for me to enter the hospital without a take-away coffee in hand. There is … Continue reading